• Beyond The Guidelines: How We Can Improve Healthcare For People With Tuberous Sclerosis Complex Around The World

    1 month ago - By Pediatric Neurology

    Tuberous Sclerosis Complex International is a consortium of organisations that support individuals with tuberous sclerosis complex around the world. In order to improve care for TSC on a global level, TSCi identified the need to expand understanding about existing resources available in other countries, what individuals and caregivers value in TSC care, key gaps between needs and reality in each country, and ways these gaps can be addressed by advocacy organisations around the world.
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